Have never felt so shite. Unable to sleep properly since December.

[George White]

Just back from the doctor. He thinks it's all grief from my mother's death. I persuaded him to start me on 20mg, though he's not convinced it'll do anything. I also convinced him to book me a test for celiac disease, even though again he's not convinced.
He wondered why I was so wound up, and I paraphrased Zoyza's chatter about doctors.

[Glebe]

Have you done any counselling George?

[McDead]

Just back from the doctor. He thinks it's all grief from my mother's death. I persuaded him to start me on 20mg, though he's not convinced it'll do anything. I also convinced him to book me a test for celiac disease, even though again he's not convinced.
He wondered why I was so wound up, and I paraphrased Zoyza's chatter about doctors.

GPs are never convinced it's coeliac unless you're literally wasting away/shitting through the eye of a needle, but they aren't trained to look or think very deeply about nutritional deficits. Anyway, keep eating bread up till the day of the test - a slice of bread a day at least - or you'll get a false negative.

(And tbh,even if it comes back negative, you should quit it regardless. Like I said in an earlier post, you don't outgrow a wheat intolerance, that's a well debunked myth https://www.verywellhealth.com/can-you-outgrow-celiac-disease-563186)

Whatever happens, good luck. I hope you at least get some relief and better sleep from the increased dose.

[Underturd]

It's good that your doctor is listening to you, even if they're quibbling about it. Good luck, mate :-)

[George White]

Have you done any counselling George?

The doctor is geting me some counselling. He said that what he thinks I really need most.

[Glebe]

Yeah I think it will help. I've done a fair bit.

[canadagoose]

The doctor is geting me some counselling. He said that what he thinks I really need most.

Great. Hopefully it helps you out, as well as the new dosage and the other tests. It's good you're making progress!

[George White]

Have very irritating head itches that feel like they're inside my brain.
Still have sore hands, although it flip flops from left to right of my palm.
Did my celiac test today, but still have to wait a week for results.

[George White]

Took 40mg tonight to make up for none yesterday, and had a really bad reaction.

[thr0b]

Took 40mg tonight to make up for none yesterday, and had a really bad reaction.

Yeah, you should never double up on doses. It's a really bad idea and won't work anyway

[George White]

Brought up acid reflux. I think taking 20mg might be useless itself.

[Underturd]

No mate, stick with it, it takes a while for it to work. And thr0b is right, never double up doses, the instructions in the packet should have told you that.

[Glebe]

Yeah George if you miss a dose don't double up on the next one mate, it's potential dangerous.

[George White]

It costs 250 quid to get an MRI. The doctors say I shouldn't, and that it'd make no fix to my anxiety.

[George White]

It's not celiac disease.
Worried that it might have been a glioma/astrocytoma that wasn't picked up by the CT, and became a larger glioma, or a gliobastoma in the six months hence.

[Glebe]

Just stay calm George, it's probably nothing to worry about. Have you started counselling?

[George White]

Not yet.
My aunt, a nurse who looks after terminally kids in Temple Street (and has thirty plus years experience, was even on a Plank-era Toy Show with Dustin in the 'video of dying kids' bit) thinks I'm fine.

A friend thinks I might have chiari malformation or some chronic diseases common with autistic people,  MCAS comorbidity (stress induced allergic reactions to things you usually aren't allergic to and sometimes no actual contact, just the cells activate by themselves).

[C_Larence]

Why would it not have been picked up by a CT? If you have had these symptoms and worries for more than 6 months then it is incredibly unlikely to be anything life threatening like a brain tumor.

[McDead]

How are you eating in general, George?

(Edited to remove the bit about your sleep, cos that's covered by the thread title innit)

[Cold Meat Platter]

Unbelievable.
The exact same thing happened to my mate, almost to the letter.
He spent ages in and out of the old sawbones before he found out what was going on.

[McDead]

Unbelievable.
The exact same thing happened to my mate, almost to the letter.
He spent ages in and out of the old sawbones before he found out what was going on.

What was wrong, if you don't mind my asking?

[Cold Meat Platter]

What was wrong, if you don't mind my asking?

Not at all.
It turned out he was a turbononce.

[McDead]

Well I'll be damned

[Underturd]

Just checking in, did the increase in the medication dose help, at all George? I hope so, and good that tests have come back clear :-)

[Cold Meat Platter]

Well I'll be damned

Word for word his reaction. In a strange way, he was right.

[George White]

Just checking in, did the increase in the medication dose help, at all George? I hope so, and good that tests have come back clear :-)

Not really, no.

[George White]

Why would it not have been picked up by a CT? If you have had these symptoms and worries for more than 6 months then it is incredibly unlikely to be anything life threatening like a brain tumor.

I had the CT scan in November. I had symptoms since September. But I've had more and worse symptoms since then, i.e. itchy head, inability to sleep, handcramps, brain fog.

[Underturd]

Not really, no.

Shit :-(

[McDead]

It's not celiac disease.

Then I have two follow-up questions:

Did you eat wheat right up to the day of the blood test? Per the Mayo Clinic, you needed to be eating at least two slices of bread (or the equivalent) per day to get a valid result from the blood test.

Are you eating bread/wheat products now? Would you consider abstaining to see if it makes a difference to your health? I've had two blood tests in the past, both negative, but I know wheat makes me ill, so I'm off it.

I'm only hitting this button so hard because you mentioned having a wheat intolerance in your youth (and also cos your symptoms are an almost total match for coeliac disease and its weirdo cousin, non coeliac gluten sensitivity)

Anyway, good luck,hope you find some answers.

[George White]

Then I have two follow-up questions:

Did you eat wheat right up to the day of the blood test? Per the Mayo Clinic, you needed to be eating at least two slices of bread (or the equivalent) per day to get a valid result from the blood test.

Are you eating bread/wheat products now? Would you consider abstaining to see if it makes a difference to your health? I've had two blood tests in the past, both negative, but I know wheat makes me ill, so I'm off it.

I'm only hitting this button so hard because you mentioned having a wheat intolerance in your youth (and also cos your symptoms are an almost total match for coeliac disease and its weirdo cousin, non coeliac gluten sensitivity)

Anyway, good luck,hope you find some answers.

I ate two slices of bread (with toppings)  as breakfast directly before the test.
I abstained for a week, and it didn't make  difference.